Day by Day with Parkinson's and Peripheral Neuropathy: Same-o Same-o

Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Monday, December 11, 2006

Same-o Same-o

I did go to church Sunday morning, which was a pleasantly normal thing to do, but my stomach acted up, as usual, so I really didn't get to enjoy the afternoon. I did get a good bit of rest, though, which I certainly needed, but I'm still not getting more than a few hours sleep at night. The Ambien just isn't working for me.

Today has been pretty much a repeat of many others, with the accompanying stomach bloating and cramps. I'm being just as careful as I can with what I eat, and I'm not having any bathroom problems, so I have to conclude that this is due to the Parkinson's itself. Just like my legs were moving so slowly before I was on medicine, evidently my digestive system muscles are also moving very slowly. The regular Parkinson's meds don't work on these involuntary muscles. That's what the Zelnorm is supposed to be helping, but I don't really think it is. And, thanks to how lousy I'm feeling, I'm losing a good bit of weight.

So it looks like I'll be moving my Gastroenterologist and Neurologist appointments up sooner, if possible, as I've had about as much of this stomach trouble as I want to put up with.

Labels: "Parkinson's", Ambien, appointments, bloating, gas, Gastroenterologist, insomnia, nausea, Neurologist, pain, stomach, Sunday, weight loss, Zelnorm

6 Comments:

At 12/11/2006 10:02 PM , Merry Mama said...

I'm sorry you're feeling unwell. And I'm sorry you subjected yourself to my rant!! Gol, glad that is over. I wasted wayyyy too much time on that person.

Anyway, how are you? And don't be afraid to tell me just because I'm grumpy. I'm mad at myself and therefore anyone, and everyone else, except those in worse pain than me... I need people who are suffering... So I can get outside my problems... and feel something else.. compassion, love, unmerited care...
instead of this cloud of anger and disgust.

Thanks for listening. I want to be there for you, if I may.
At 12/12/2006 1:54 AM , Dirty Butter said...

Well, I didn't mind listening to the rant at all. I just hope it did you some good, Merry Mama, as that was some big time venom you let loose there!

I'm certainly not feeling well, mainly because it's turning into a daily thing with me. My weight loss is an indication of just how much I'm avoiding eating, in an attempt to avoid the cramping and bloating I'm getting with every mouthful of just about anything.

You're apologizing for one post of venting? This whole blog is my vent and rant about how I feel each day. I write it for me, and it surprises me that anyone else would put up with reading all my pity party long enough to want to comment on it. That just goes to show what good friends you can make online.

We'll just have to be there for each other, OK?
At 12/12/2006 10:54 AM , Marion said...

Yes, DB, thank you for listening and doing my thinking for me, at times!

You have so much on your plate...it must add to your PD symptoms, and I think that an earlier visit to your doctors would be a good idea.

I know only too well how hard it is to force food down that won't digest well. I can stay away from food all together, and that's not good.
At 12/12/2006 11:39 AM , Dirty Butter said...

Marion, I'm just glad I could help a little. I did get the appointments moved up, so that's a start, anyway. I weighed a little while ago. I've lost 12 pounds in a couple of months or less, I think, unintentionally.
At 12/18/2006 8:09 PM , Wendy said...

I just finished writing a thank you on your other blog and I saw a post on Parkinson.
I don't have Parkinson's , but My dad did, my mom is still involved/runs two support groups on Parkinsons' in Norhtern NJ .If you have any questions about med or anything, please ask me & I'll forward it to her. She's got lots of knowledge on the subject > and I guess I do to.
I owe you one for finding "black cat"
At 12/18/2006 8:28 PM , Dirty Butter said...

Why, thank you very much, Wendy! I may take you up on that offer at some point, but for now I've been able to satisfy my desire for information with good ole Google.