Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Friday, December 08, 2006

We Went on a Date Today!!

Thanks to being able to hire the same sitter we had used several years ago, when we were taking care of my mother and father in law, we were able to go out on our Date Day today! It was wonderful to get out of the house and know that Daddy would be well taken care of.

I set a fairly light itinerary for the day, since I knew I was so tired, but I did want to at least go to a few Estate Sales. We had very good luck at one of them, since we caught them at that stage when they just wanted to get rid of everything. That doesn't happen very often, but when we're lucky enough to find a real sale like that, we usually leave with some real bargains. Today was no exception. Now all I have to do (HA!) is find the time to photograph everything we bought and write up the descriptions, so we can put them up for sale on eBay.

I managed to take several doses of Tylenol during the day without DH realizing it, as I didn't want him to know that I was so achy. I was determined that our day together not be spoiled. I only used the cane at one house, because the driveway was very steep, but my walking was stiff and awkward feeling all day today. That's a sure sign of just how tired I am.

I had a bad headache today, too, something I rarely have any more. I suspect that's because I'm still not getting enough sleep. I've already had my night medicine and a sleeping pill, as I write this, and I plan to go to sleep as soon as I finish this post. I'm really not having that much trouble going to sleep. It's staying asleep that's giving me trouble. And, of course, my tummy couldn't get through the day without putting up a fuss. I was extra careful to eat bland foods, but here I sit, with the hot pad across my middle, trying to make things feel better.

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4 Comments:

  • At 12/10/2006 4:09 AM , Anonymous Ripley said...

    Lack of sleep or the quality of sleep is one thing I cant get used too. Before PD I used to sleep like a log, now I`m lucky if I get more than 4 hours sleep and the amount of times I wake during those 4 hours is rediculous.

     
  • At 12/10/2006 4:35 AM , Blogger Dirty Butter said...

    It's good to hear from you, Ripley! So this is a PD thing, and not just the stress of dealing with Daddy all day long? I didn't realize that. Even with the sleeping pill, I'm only getting 4 or 5 solid hours of sleep. Then I catch a quick minute here or there over the computer for the rest of the night, waiting for something to load, etc. I jerk awake, and I'm wide awake for another hour or so, before I drift off momentarily again.

     
  • At 12/10/2006 4:52 AM , Anonymous Ripley said...

    I`m not sure, as I say I used to sleep like a log but not anymore. Cant be an age thing as I`m only 41, could be stress but I`ve read that often in PD your sleep goes all to pot.

     
  • At 12/10/2006 5:18 AM , Blogger Dirty Butter said...

    Well, I'm 63, and I think most people sleep less as they get older anyway. Goodness! You really were young when your PD was first diagnosed! With that little sleep, it's no wonder you battle depression. Or is it the depression causing so little sleep??? chicken and egg???

    I don't know if I can take Ambien long term or not. The prescription is for 20 pills.

     

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