Hallucinations
Daddy has been hallucinating for the last several days off and on. At times he doesn't realize he is at home, and starts wanting to know when we're going home. Although he is blind, I've noticed him looking around at things with this wide eyed expression on his face. He's obviously seeing things that aren't there. And, he's talking about them, too! Normally, Daddy is a very quiet person, but he's been chatting away about these children playing in the living room and the trucks in the bedroom. No amount of reassuring him that it's not real will convince him of it. Up until yesterday, the hallucinations seemed harmless enough, but were a definite sign that something had made a down turn.
Yesterday morning was the worst I've had yet with Daddy. Thank goodness my DH got to the house just about the time I was going to get him up. I found him lying astraddle of the bed, with legs partway off, having made an unsuccessful attempt to get himself out of bed. His bottom was much too close to the edge of the mattress to have him sit up, so we had to try to maneuver him back in the bed. All the while, he's loudly protesting that the trucks are coming into the bedroom, and he's struggling against us, trying to get up. We finally managed to get him seated at the foot of the mattress with enough spare room to be reasonably safe.
The question was, now that we had him there, how were we going to get him up, when he was exhausted. Thank goodness I've had prior experiences I could fall back on! We ended up taking the arm off the wheelchair and making a difficult sideways transfer of about 12 inches!! He's just a dead weight and doesn't help at all. By the time we got him in the chair, I was already worn out. Thank goodness I had taken my Zelepar earlier, before he got up!!
By the hardest, we managed to get him partially dressed, but there was no way to pull up his pants or change him out of his night Depends into fresh ones. With one more gigantic effort, we managed to lift him up enough to get the wet Depends off and a dry one under him, partially taped up on the sides. That was just going to have to do for then. DH rolled him into the kitchen, with his trousers down at his ankles, and I covered him up the best I could.
His kitchen table is too low to let the arms of the wheelchair go under it, so he tried to eat breakfast farther away from the table than he's used to. He was still hallucinating and talking about the hole in his bedroom wall where the trucks had come through. He ate very little, but he did let me feed him a few bites. Luckily, we have the Rhoho cushion that Mama had after she broke her hip. Sitting on that is like sitting on air, and it's designed to prevent pressure sores. So we stood him up one last time for the day, and managed to get it under him. We ended up leaving him in the wheelchair all day, for safety's sake.
DH stayed longer than usual last night, so he could help me get Daddy to bed. It was not easy, but it was nowhere near as bad as getting him out had been.
Frances came today, and thank goodness Daddy was lucid this morning! Since I knew what to expect today, she and I changed the Depends and got him partially dressed before we ever let him get up. That made things a lot simpler. We stuck around and helped with him until she had him ready for breakfast. Then we got out of there for our Date Day. We both really needed to be away from all that nervous tension for awhile.
He's still really weak tonight, but he's beginning to understand a little of what is expected of him when he needs to make a transfer. That helps a lot.
So I write this tonight, not knowing who I will deal with tomorrow - my Daddy, or the fellow with all the trucks and children. I'll find out in the morning, won't I?
Yesterday morning was the worst I've had yet with Daddy. Thank goodness my DH got to the house just about the time I was going to get him up. I found him lying astraddle of the bed, with legs partway off, having made an unsuccessful attempt to get himself out of bed. His bottom was much too close to the edge of the mattress to have him sit up, so we had to try to maneuver him back in the bed. All the while, he's loudly protesting that the trucks are coming into the bedroom, and he's struggling against us, trying to get up. We finally managed to get him seated at the foot of the mattress with enough spare room to be reasonably safe.
The question was, now that we had him there, how were we going to get him up, when he was exhausted. Thank goodness I've had prior experiences I could fall back on! We ended up taking the arm off the wheelchair and making a difficult sideways transfer of about 12 inches!! He's just a dead weight and doesn't help at all. By the time we got him in the chair, I was already worn out. Thank goodness I had taken my Zelepar earlier, before he got up!!
By the hardest, we managed to get him partially dressed, but there was no way to pull up his pants or change him out of his night Depends into fresh ones. With one more gigantic effort, we managed to lift him up enough to get the wet Depends off and a dry one under him, partially taped up on the sides. That was just going to have to do for then. DH rolled him into the kitchen, with his trousers down at his ankles, and I covered him up the best I could.
His kitchen table is too low to let the arms of the wheelchair go under it, so he tried to eat breakfast farther away from the table than he's used to. He was still hallucinating and talking about the hole in his bedroom wall where the trucks had come through. He ate very little, but he did let me feed him a few bites. Luckily, we have the Rhoho cushion that Mama had after she broke her hip. Sitting on that is like sitting on air, and it's designed to prevent pressure sores. So we stood him up one last time for the day, and managed to get it under him. We ended up leaving him in the wheelchair all day, for safety's sake.
DH stayed longer than usual last night, so he could help me get Daddy to bed. It was not easy, but it was nowhere near as bad as getting him out had been.
Frances came today, and thank goodness Daddy was lucid this morning! Since I knew what to expect today, she and I changed the Depends and got him partially dressed before we ever let him get up. That made things a lot simpler. We stuck around and helped with him until she had him ready for breakfast. Then we got out of there for our Date Day. We both really needed to be away from all that nervous tension for awhile.
He's still really weak tonight, but he's beginning to understand a little of what is expected of him when he needs to make a transfer. That helps a lot.
So I write this tonight, not knowing who I will deal with tomorrow - my Daddy, or the fellow with all the trucks and children. I'll find out in the morning, won't I?
Labels: altered state, care giving, confusion, Depends, difficulty walking, exhaustion, Friday Date Day, hallucinations, respite care, Rhoho cushion, stress, wheelchair



6 Comments:
At 1/28/2007 12:47 PM ,
Marion said...
DB, you are amazing! Unfortunately, I know exactly what you're talking about, and it is so very difficult, the transfer from chair to bed or vice versa.
My father in law had hallucinations just like the ones you mention. He had had many falls, and had hit his head more than once.
It turned out he had fluid on the brain, and a shunt had to be placed.
He would try to escape trucks and elephants, too, before the shunt was placed!
At 1/28/2007 3:41 PM ,
Dirty Butter said...
Daddy just doesn't trust anyone well enough to let them "dance" him from one seat to another. What we have found works better is to get him up from chair to walker and then we can get him to turn the walker and we can scoot the wheelchair under him. That won't work for the car, but it does everywhere else, thank goodness.
Mama had some of the same hallucinations with Alzheimer's, Marion. They seem to be universal, if you live long enough!
At 1/28/2007 4:02 PM ,
mozartmovement said...
DB,
Marion's right--you are amazing. You articulate your struggles so well, I feel like I've seen you in action! You will surely have jewels in your heavenly crown for the effort and devotion you're giving your Dad. Sending prayers your way...
At 1/28/2007 6:00 PM ,
Dirty Butter said...
I appreciate the prayers, MM, as we can certainly use them. As for crowns, well, that's another matter. So many people deal with situations far worse. Have you read RUTH's blog about a million stories out there? If you haven't, you should.
At 1/29/2007 1:38 AM ,
RUTH said...
I appreciate how difficult this must be for you. I hope that today is a better day for you...it must be so worrying and my heart goes out to you. What a special person you are
(((hugs)))
At 1/29/2007 2:16 AM ,
Dirty Butter said...
Thank you so much for your understanding support, Ruth. My heart goes out to you, too!! {{{HUGS}}} right back!
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