Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Saturday, January 06, 2007

Tummy Improvement OR Walking Faster?

I've been on the new Zelepar medicine for several days now, and my digestive system is behaving just fine. I don't seem to be getting quite as much help with my gait as I did with the Requip or Sinemet, however, but I'm still on the samples. When I go back to the Neurologist next Friday, it may be that he will order a prescription for a higher dose or more doses, which might make the difference. Anyway, even if the dose stays where it is now, it seems like a reasonable trade off between stomach problems and balance and walking problems. I'd love to walk better, but I can live with it the way it is now, if I have to. It's nice not to spend part of every day miserable, with a hot pad on my tummy!

I said at first the Zelepar didn't taste bitter, however, I'd better amend that evaluation. Yes, it is bitter, but not enough to bother me, anyway. (The trick is to be sure you place it under, not on, the tongue.) It dissolves under my tongue so quickly that it's just a few seconds, and I can swallow it. You're not allowed to drink or eat anything for at least 5 minutes before or after taking it, but my saliva quickly washes the taste away.

We're still staying with my Daddy, which means I spend most of my days and every night in a hot house. We tried to find a compromise temperature for the thermostat, but at 101, he gets too cold, while we're still sweltering. I have noticed that I'm having more trouble with the heat this week, since I've been on the Zelepar, than I was before I started taking it. I'm getting what feels exactly like hot flashes several times a day, and I've been past that stage for some time now. I have read that Parkinson's can mess with the body's regulation of internal temperature, so I guess that's what's happening to me right now. Or is it because of the Zelepar? I really don't know.

I was on Requip before starting the Zelepar. Requip is a dopamine agonist, but Zelepar is an MAO-inhibitor, so they don't attack the PD symptoms the same way. There's big news in the Birmingham News today that a doctor at UAB is close to getting FDA approval for a patch version of a dopamine agonist. That will be good news for me, as the Requip did a better job of improving my balance and walking than it looks like the MAO-inhibitors are going to. I'm all for any PD med that I don't have to swallow!! So this is something else for me to be hopeful about.

It's great to see that there is good news on the horizon for the large number of people who really suffer with this disease. My own symptoms and discomfort level are so mild compared to people who have had Parkinson's for years. I pray that all this new research may bring them relief in the near future, instead of years from now.

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8 Comments:

  • At 1/07/2007 9:26 AM , Blogger Ruth said...

    Great news about the new medication alternative! Glad your tummy is feeling better too.

     
  • At 1/07/2007 1:23 PM , Blogger Dirty Butter said...

    This dopamine agonist patch and a levadopa patch are both supposed to be approved sometime this year.

    One or the other of those will help the majority of PWP!!

     
  • At 1/08/2007 11:38 AM , Blogger Joseph Potocny said...

    I am glad that things seem to be helping and hope they do. I will pray for you.
    Joe

     
  • At 1/08/2007 11:49 AM , Blogger Dirty Butter said...

    Thank you, Joe! I appreciate your prayers, and I had already added you to my prayer list.

    May we both have a good year!

     
  • At 1/08/2007 4:06 PM , Blogger Marion said...

    Our friend, who has PD, is much improved this year over last year, due to advances in research and medications. It bodes such hope for the future.

    Hope your balance will soon be regulated, too!

     
  • At 1/08/2007 4:19 PM , Blogger Dirty Butter said...

    I'm so glad to hear that, Marion. There are so many different types of PD meds now, it's good to know that one of them is helping him.

     
  • At 1/13/2007 12:07 AM , Blogger RUTH said...

    Dropped in to say Hello and thanks for the blog visit. It will take me a few visits to go through all your archives but have done a few "hops" to try and get some idea of what is going on in your life. It's good to hear someone being so candid about their situation; I am sure it is of great benefit to others with similar problems. Also interesting for me to read about the Health Service in other parts of the world. I am glad that the new drug seems to be of some help.
    Just as well we have pictures next to our names as you will now have two Ruths posting comments!
    Till next time.
    Rx

     
  • At 1/13/2007 3:01 AM , Blogger Dirty Butter said...

    I'm glad you've stopped by, Ruth the gardener and care giver! Although I have my share of problems, what you are accomplishing is astounding! I look forward to your continued visits.

     

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