Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Sunday, February 04, 2007

For the Want of a Nail .....

It's pitiful the domino effect one small problem can have on the well being of an elderly person.

From the start of putting Daddy in the hospital bed, he has been very touchy on his left heel when I'm getting him dressed in the mornings. I had already, some time ago, asked for help keeping his heels in good condition, as I had noticed some splotchy areas there. The nurse said she would order booties. When they didn't bring them, I asked the next nurse I saw about them, and she said she would take care of it. Well, the booties didn't come, and yesterday morning Daddy had a water blister on the bottom of that left heel that is huge.

Even though it was Saturday, I called the after hours Hospice number, telling them about his heel. The nurse had a call to make in the opposite direction from us, but she said she would see him sometime that day. Sure enough, she did come about lunchtime.

When she measured the blister, it was 2" by 3"!! His whole heel has broken down!! No wonder it was hurting. She used an ointment on it, padded it with gauze, wrapped his foot in Coban, and reminded me to hang his heels off a pillow and not let them touch anything. She said I did the right thing calling, and she thought it had been caught soon enough that it would heal quickly. Of course, Daddy is diabetic, so quickly is a relative term.

I'm just sick about that heel. I've been going to his house to fix breakfast and put on his shoes and socks for years now. I always checked his feet and made sure I smoothed out any wrinkles in his socks, before putting on his shoes. Now, too many people are dressing him, and I have no idea how the blister got started.

So, for want of a nail, the battle was lost. Hopefully, our battle is not lost, but it certainly has been put in jeopardy! Because of the huge bandage on his foot, he can't wear his shoes. Because he can't wear shoes, he's not as sure footed when he tries to stand up. Because he's having trouble standing or walking, he had to stay in the wheelchair almost all day long. Because he's in the wheelchair and not walking to the bathroom, he's not getting any exercise, so his legs are even weaker. Because he's sitting almost constantly, with his legs up, the pressure on his bottom is greater, so the sores on his bottom are getting worse!

The nurse was obviously concerned that I had not gotten the booties when I asked for them. She said she would see to it that the medical supply company brought out the seat cushion, booties, and an air mattress as soon as possible. We'll see.

This is exactly why I don't want to put him in a nursing home. If his skin has broken down here, with me asking several times for the equipment that would have prevented it, how much longer would they have waited to deal with his skin, with no one around to remind them??

We spent the day yesterday trying to keep him as comfortable as we could, what with his bottom sore and his foot sore.

This was not the Hospice we had used with Mama and Pop, but the one the doctor's office made arrangements with. I'm seriously considering switching Hospices. That means returning all the equipment and getting another set from the Hospice we liked, but at this rate, it will be worth it!! It all depends on how long it takes them to get this equipment to us this week. If it's delayed, they're fired, no matter how much of a hassle it is!!

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9 Comments:

  • At 2/04/2007 2:39 PM , Blogger mozartmovement said...

    DB,
    I understand your anguish, but try not to be too hard on yourself. An idea--at work, we've sometimes put Duoderm on heels. I'm not sure if diabetics can use it, but, if so, it might allow your Daddy's shoes to fit. Use the whole square, cutting slits into the two opposite edges which will allow the dressing to cup the heel when it's folded around. We would then cover across with 2" hypofix tape to keep the edges from rolling/drying. Wish I was there to show you. If this can't be used on the broken-down heel, you might use it to protect the intact one. Ideally, the dressing would not need to be changed more than every 3 days or so. Keep up your courage--nothing's perfect this side of heaven.

     
  • At 2/04/2007 7:44 PM , Blogger Dirty Butter said...

    I appreciate the encouragement, MM, but I can't help but be aggravated, maybe even angry. It's just frustrating, after all these years of keeping his feet in such good condition. I know how dangerous sores on feet can be for a diabetic. People have had limbs amputated from something like this.

    I'll ask the next nurse I see about the Duoderm. Thanks for the suggestion.

     
  • At 2/04/2007 10:20 PM , Blogger Joe said...

    The problem with using duoderm on heels is that it often creates more pressure, and using it on a blister that has not broken open can also be a problem because it will create a very moist environment. The best thing to do for a heel blister is to relieve the pressure. There are orthotic devices available that are specially made to relieve the pressure on heel ulcers. These devices come with a sole similar to a shoe, and he will be able to walk with it. You could ask the Hospice nurse to check into something like that.

     
  • At 2/05/2007 5:53 AM , Blogger Dirty Butter said...

    Thanks, Joe (from PD Warrior), for the information!! I appreciate you taking the time to explain, and I think I'll call his Podiatrist today to see what they can do about that shoe. Hospice has already told me I can take him to any doctor that is not heart related, as that is what they are there for.

     
  • At 2/05/2007 8:02 AM , Blogger RUTH said...

    For some reason I had difficulty getting into your post yesterday. This a heart breaking story but one I understand only too well. I remember a year ago I was waiting for incontinence pad to arrive...I phoned and phoned for 3 days. In the end one of my daughters who came to visit from some distance did a one hour drive to buy us some. When one of the district nurses did deign to pop in she said she'd forgotten them and would go straight away and get them.......she finally brought them the next morning.
    Rx

     
  • At 2/05/2007 11:45 AM , Blogger Dirty Butter said...

    Of all things to let you run out of!! We've had the problem of them leaving the wrong size, because they were out of the correct ones.

    I did call the Podiatrist this morning, and he's coming to the house Wednesday evening to take a look at Daddy's heel. And the hospice nurse changed the dressing on it today.

     
  • At 2/05/2007 4:24 PM , Blogger mozartmovement said...

    Thanks, Joe, for the info. There was a time a few years back when our ET nurse seemed to consider duoderm the answer to everything. I understand thinking on this has gone through some changes. Thankfully, heel ulcers on our geripsych unit have become less common, too.

     
  • At 2/05/2007 4:36 PM , Blogger Dirty Butter said...

    So far, MM, we're not dealing with an ulcer, and I sure hope it doesn't reach that point. The skin is still intact, thank goodness. Hospice is using A&D ointment on several thicknesses of gauze, wrapped with Coban. We're keeping everything from touching the heels, too.

    My problem is not so much how they're treating it, as the fact that I truly believe the heel would have been OK if they had ordered the booties when I asked for them.

    Hospice has tried Duoderm on the bottom sores he has, but it keeps turning into a gooey glob, rather than a skin covering.

     
  • At 6/21/2007 3:24 AM , Anonymous Ann said...

    Thank you very much for sharing your thoughts. It is always great pleasure to read your posts.

     

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