Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Thursday, February 15, 2007

My Uplifting Valentine's Presents

This last week has really been a strange one, on several counts. I wouldn't normally go this long without a post, but I tried to get a little too fancy with my Drive Partitioning software, and couldn't get the computer to boot at all! It took me several days to figure out how to fix it, and several more to get everything back the way it belonged. Luckily, I'm good about backing up my data, so I didn't lose any of that.

In between working on the computer, DH and I have had quite a time with Daddy. He's been getting more and more wobbly, and less and less able to follow our transfer directions. So, we've had several episodes of it taking every bit of strength the two of us had to get him from one place to another. The last straw was Monday or Tuesday (I've lost track HA!) when we had the usual bowel problem. Thank goodness I had decided to move the commode into the bedroom, instead of trying to take him in the bathroom. By the time that ordeal was finished, he just about finished all three of us before we got him cleaned up and back in his wheelchair. The Hospice nurse came not long after that, and she could tell how exhausted we all were. This time, when I asked for lifting help, she agreed that it was time.

So, what did I get for Valentine's Day???? A brand spanking new Hoyer Lift!!! Frances, our paid care giver, DH, and I learned how to use it this morning, and we were able to move Daddy from the bed all the way into the living room to his recliner, without any trouble at all. He's more comfortable, and we're MUCH happier. And our backs and nerves appreciate it, too!!

I've been pleased with how well the Zelepar has been helping me deal with all this physical and emotional strain. I did have a bout of hysterical crying this weekend, though, because Daddy's foot looked worse to me, and I felt so guilty that I had let it get that way. My head knew I'd done my best, but my emotions sure didn't. The Podiatrist was here today, and he's very pleased with how it's progressing, so that's a big relief. Hey, that's another Valentine's Day present for me!!

And, today, for the first time in years, the pressure sore on Daddy's bottom is all but healed! Present number THREE!!

I feel like a huge weight has been lifted off my shoulders. For the first time in quite some time, I really think we're going to be able to keep Daddy out of a Nursing Home. The lift, the gel seat cushion, our Estate Sale sheepskin finds, and the rippling mattress have made all the difference in the world in Daddy's quality of life. I thank God for his tender mercies.

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9 Comments:

  • At 2/15/2007 4:00 PM , Blogger RUTH said...

    I am so pleased that you had these gifts. Don't ever feel guilty that you cannot do the impossible...I have done that myself but now realise that some things (like your Dad's foot) cannot be helped no matter how vigialant we are. You are doing so well especially as you are only now getting the equipment you need. Take care, thinking of you
    Rx

     
  • At 2/15/2007 4:22 PM , Blogger Marion said...

    Hmmm...Mom's caregivers are also using a lift with my mother...Mom has commented on how well she feels after transfers now.

    Keep well, DB and keep releasing those tears...it's so important!

     
  • At 2/15/2007 6:57 PM , Blogger Dirty Butter said...

    When I get in one of those depressed moods, Ruth, no amount of logic is going to stop the flood of emotions. Even while I was crying so hard, my DH was telling me the same thing you've said, and I was telling him how he was right ... while I continued to sob uncontrollably!

    I think part of the problem is that we have something to compare this Hospice to, and it falls very short. This makes the fourth time we've dealt with Hospice over the years (twice now with Daddy), and my expectations are higher than they are living up to.

    It's so frustrating and infuriating!!!!!

     
  • At 2/15/2007 6:59 PM , Blogger Dirty Butter said...

    You release with anger ... I do it with tears ... but either way, it does release a lot of pent up feelings that need to come out. I'm just glad I'm not around you when you're venting, Marion!!!! I'd be bawling LOL!!!!!!!

     
  • At 2/16/2007 2:39 PM , Blogger Ruth said...

    So glad you got the lift - those are great. A belated Happy Valentine's Day!

     
  • At 2/16/2007 4:18 PM , Blogger Dirty Butter said...

    The lift is really a help, Ruth. We just need to learn how to use it more comfortably. That will happen with practice.

     
  • At 2/16/2007 11:26 PM , Blogger Carrie said...

    I honestly don't know how you do this everyday. You amaze me. I've seen those lifts at the nursing home and they are an incredible help. I'm really glad you got one :)

     
  • At 2/17/2007 5:16 AM , Blogger Dirty Butter said...

    Carrie! How can you say that!!!!

    I don't know how YOU do it!!!

    I'm sorry it's been so long since I've stopped by your blog. Glad to hear your Mom is doing better and that your Dad's eyes seem better, too. It does sound like all your care giving efforts are taking their tole on YOU, though. I feel for you, and will pray for all three of you.

     
  • At 2/17/2007 5:19 AM , Blogger Dirty Butter said...

    HA! In spite of my best efforts, I couldn't for the life of me figure out how to spell "toll"! It was only after I published to you, Carrie, that it dawned on me which "toll" I wanted! I can certainly identify with your Mom's chemo fog.

     

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