Sleep? What's That???
I'm tired. I've reached the point that I'm too tired to sleep, even when I could. I have the Ambien CR, but the Neurologist doesn't want me taking it all the time.
Besides, I might not hear Daddy if I'm doped up. He's becoming very unpredictable as to his sleeping patterns. There have been some nights lately where he hallucinated much of the night, even clawing to take off his Depends and trying to climb over the bed rails. Other nights, he talks in his sleep. I've had several lengthy conversations with him in the middle of the night, where he never opens his eyes, and I can tell he's still asleep LOL! Other nights, he barely twitches a muscle, but stays in exactly the same place all night long. That's not good for his skin.
The lift has helped with the lack of strength problem tremendously (Daddy's and mine, too), and Daddy is accepting it without argument, thank goodness. He's also letting us feed him, which surprised me. I thought he'd balk, but I think he's beyond that. He still takes spells of hateful talk, but it doesn't happen too often any more. Frances heard it for the first time yesterday. It really surprised her. We told her that meant she was part of the family now. ;)
We've reached that point in care giving where we pretty much control everything to do with Daddy now. We've bought sweat pants and put his regular zipper pants away. I've put up his watch, wallet, and keys, which he'd always put on first thing each morning. He's no longer wearing athletic undershirts or his favorite flannel shirts. We've bought him some knit Henley long sleeve shirts instead, so we could get them on and off easier that the unstretching flannels. He's in white diabetic ankle socks, instead of his dress socks, and I can't remember the last time he had on both shoes. In fact now we're not even bothering with the slipper socks, as he's not standing or walking. The sores on his bottom and his heel look much better, because we have more control over his skin now that he's not walking and in his own bed. It's no wonder he keeps asking to go home! He certainly doesn't recognize the life he's living now. But he's safe (well, except for his rail climbing times), and he's as comfortable as we can get him.
The Zelepar seems to be sufficient for my physical Parkinson's symptoms, but I'm not sure any medicine could improve the mental deterioration I see, considering all we're doing right now. Thank goodness for backspace and spell check!!
At the rate I'm going it won't be long before it's just too difficult to try to correct all my typing mistakes. I'll just join Joe, and let you see what it's really like for me HA!!
So, I've cut out what I could in the way of other responsibilities. I haven't put a new item on eBay in some time, and I've put up a notice that we are not able to ship promptly right now. I've sent an email to all the BLOG VILLAGE members, asking them to help me with the monthly check on all the voting links and dead blogs. I've even cut down on my own reading and commenting, not because I want to, but because I'm just overwhelmed right now.
As you can see, I'm not very cheery today. I'll feel better once I get some sleep, though - whenever that will be.
Besides, I might not hear Daddy if I'm doped up. He's becoming very unpredictable as to his sleeping patterns. There have been some nights lately where he hallucinated much of the night, even clawing to take off his Depends and trying to climb over the bed rails. Other nights, he talks in his sleep. I've had several lengthy conversations with him in the middle of the night, where he never opens his eyes, and I can tell he's still asleep LOL! Other nights, he barely twitches a muscle, but stays in exactly the same place all night long. That's not good for his skin.
The lift has helped with the lack of strength problem tremendously (Daddy's and mine, too), and Daddy is accepting it without argument, thank goodness. He's also letting us feed him, which surprised me. I thought he'd balk, but I think he's beyond that. He still takes spells of hateful talk, but it doesn't happen too often any more. Frances heard it for the first time yesterday. It really surprised her. We told her that meant she was part of the family now. ;)
We've reached that point in care giving where we pretty much control everything to do with Daddy now. We've bought sweat pants and put his regular zipper pants away. I've put up his watch, wallet, and keys, which he'd always put on first thing each morning. He's no longer wearing athletic undershirts or his favorite flannel shirts. We've bought him some knit Henley long sleeve shirts instead, so we could get them on and off easier that the unstretching flannels. He's in white diabetic ankle socks, instead of his dress socks, and I can't remember the last time he had on both shoes. In fact now we're not even bothering with the slipper socks, as he's not standing or walking. The sores on his bottom and his heel look much better, because we have more control over his skin now that he's not walking and in his own bed. It's no wonder he keeps asking to go home! He certainly doesn't recognize the life he's living now. But he's safe (well, except for his rail climbing times), and he's as comfortable as we can get him.
The Zelepar seems to be sufficient for my physical Parkinson's symptoms, but I'm not sure any medicine could improve the mental deterioration I see, considering all we're doing right now. Thank goodness for backspace and spell check!!
At the rate I'm going it won't be long before it's just too difficult to try to correct all my typing mistakes. I'll just join Joe, and let you see what it's really like for me HA!!
So, I've cut out what I could in the way of other responsibilities. I haven't put a new item on eBay in some time, and I've put up a notice that we are not able to ship promptly right now. I've sent an email to all the BLOG VILLAGE members, asking them to help me with the monthly check on all the voting links and dead blogs. I've even cut down on my own reading and commenting, not because I want to, but because I'm just overwhelmed right now.
As you can see, I'm not very cheery today. I'll feel better once I get some sleep, though - whenever that will be.
Labels: "Parkinson's", Ambien CR, care giving, depression, eBay, hallucinations, insomnia, Neurologist, Quality of Life, stress, Zelepar



11 Comments:
At 2/17/2007 3:54 PM ,
RUTH said...
I understand so well the problems with sleeping. I luckily am in fairly good health but I know when I had flu I didn't dare take anything that would make me sleep too heavily for fear of not hearing Mick if he coughed or choked. Even when I can sleep I don't.....maybe an hour or two and then I'm awake again...yet I feel tired and yawn all day. Crazy!!!
I understand your concerns that your dad does not recognise your home. I too worry about this with Mick; every morning for 18 months I make the same 5 minute conversation with him; telling him we sleep downstairs as he can't put his weight on his feet AT THE MOMENT; we have a new tv; we have different curtains etc....as though it was all done yesterday!
I am glad your Dad's sore areas are healing well....much credit to you for that. Keeping your Dad safe and comfortable is the important thing....please don't worry about trivial things like spelling mistakes......wee awl mayke themm....LOL
Sending you Happy Thoughts and cheery (((hugs)))
Rx
At 2/17/2007 4:32 PM ,
Dirty Butter said...
I've been meaning to do a post about this whole "I want to go home" business, but I haven't had time yet. I, too, describe his furniture, etc., every day. It just doesn't seem to stick.
As for the spelling, I'm not ready to give in to that yet. It's kinda like the walker. It's an admission I'm just not ready to make. I do let my true state of mind show with Joe, because he needs to know he's not alone.
The fact that I've mentioned it, though, in my post, shows that I'm not far from relinquishing just one more piece of myself to the Parkinson's. I'm just working up to it, I guess.
At 2/18/2007 1:07 AM ,
RUTH said...
Have just read the comment you left re; Greg Moore. What a fantastic discovery!!! This is definitely sounding more promising again. I did so many searches after the last information you gave me but this never came up. Thank you, thank you.
Rxxx
Re your Parkinsons.....I know to little to fully understand how hard it must be for you. Maybe mentioning it means you are FACING it not that you are relinquishing yourself to it? I wish I could help.
{{hugs}}
Rx
At 2/18/2007 5:55 AM ,
Dirty Butter said...
I thought I was right that Greg Moore had lived/worked at Smallbridge Hall. I'm glad I quoted the page again, as you must have overlooked that sentence. Not hard to do. One moment they're talking about the butcher shop, and the next Smallbridge.
As for the typing - your wording is probably better - I'm just not in an optimistic frame of mind about it right now. The habit of backspacing and putting the letters together correctly every time I mess up is a strong one, but it's hard to maintain the train of thought when I constantly back up. FireFox warns me right away when I goof, even inside blogger comments, so the mistakes can be fixed. There are just so many of them. It's embarrassing for someone to see what I write in such a mess. After all, I taught school for 29 years! LOL
At 2/18/2007 10:08 AM ,
RUTH said...
It is the content of what you write that is important. Hope you get a little more sleep tonight.
Rx
At 2/18/2007 11:47 AM ,
Dirty Butter said...
Thanks for the encouragement, RUTH, but for now I'll keep trying to make it look right. Don't be surprised if you see my gibberish sometime way too soon, though.
At 2/19/2007 8:35 AM ,
Sheila said...
I hope you have been able to get some sleep. I am thankful you can continue to keep Blog Village running. I don't know how anyone can not get down when we are faced with dealing with the decline of our parents. On so many levels, it's hard. I hope today is a good day.
At 2/19/2007 10:08 AM ,
Dirty Butter said...
I did sleep last night (no sleeping pill, either), Shelia, and I feel better today. Thanks!!
At 2/19/2007 6:10 PM ,
Marion said...
Lack of sleep is terrible for a relatively healthy system, let alone dealing with Parkinson's at the same time.
And dealing with aged parents is so emotional, even in a healthy body, DB, so it's no wonder you feel down at times.
You're allowed to. Hang in there.
At 2/19/2007 6:37 PM ,
Dirty Butter said...
I have felt much better today. physically and emotionally, Marion, since I slept well last night. Thanks for the encouraging words!
At 6/21/2007 9:15 AM ,
John said...
Lack of sleep may cause some helth problems.
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