Testing ... Testing ... This Is Only a Test
I thought I'd o a post without any back spacing or spellchcking, just to give you folks an idea of what my typing is like these days. This will also give me a benchmark as to the extent of my mind/finder coordiatniton at this time. so bear with me while you try to read my gobbledytook. LOL
Daddy an di both ahd a good night's sleep slast night!! so I'm much more rested to day that usual. We;re beginning to settle into something of a routine finally, alsthough we're still experimenting with ways to make the lift help us the most effiiently.
I did have to call the night service night efore last, because he was choking on his own spit in the bed about several hours after he went ot sleep. I tried moving the head of the bed up and down and turning him from side to dide, but nothing seemed to help. I think the nurse thought i was describing a death rattle when I first talke to her, but I assured her that I knew that sounded like. She said to wake hime up and see if that would help with stronger coughting. I let the bed flat, turned him onto this side, slapped him on the back the way cystic phibrosis patients done, and this huge glob of thick mucus finally came up. Surprisingly, he went right bakc to sleep, and slept well the rest of the night. I didn't thogh, as I was afraid it would happen again.
I seem to be going from one problem to another, as far as I'm concerned. Now it's my back hurting again. It's not the vertebrae, but the muschles of my upper back. That's from leaning across Daddy, even though we have the hospital bed. This is definitely from the Parkinson's, so I guess it's time to add the Requip to my meds again.
I can tell immediately when I make the se spelling mistakes and typing mistakes. At least I know it's wrong, but I take spellls of not being able to cooridante everything einvolved in acutally typing, And I really wa sa good typist, so it's not because I don't know how LOL!!
Well, of you've srubbled thorugh this you have some idea of the whats' involved in turning out a post the way they usually lool. It's the same with comments.
Did I say that Parkisons' is a terible disease? And I'm ant Stage One!!!!
Daddy an di both ahd a good night's sleep slast night!! so I'm much more rested to day that usual. We;re beginning to settle into something of a routine finally, alsthough we're still experimenting with ways to make the lift help us the most effiiently.
I did have to call the night service night efore last, because he was choking on his own spit in the bed about several hours after he went ot sleep. I tried moving the head of the bed up and down and turning him from side to dide, but nothing seemed to help. I think the nurse thought i was describing a death rattle when I first talke to her, but I assured her that I knew that sounded like. She said to wake hime up and see if that would help with stronger coughting. I let the bed flat, turned him onto this side, slapped him on the back the way cystic phibrosis patients done, and this huge glob of thick mucus finally came up. Surprisingly, he went right bakc to sleep, and slept well the rest of the night. I didn't thogh, as I was afraid it would happen again.
I seem to be going from one problem to another, as far as I'm concerned. Now it's my back hurting again. It's not the vertebrae, but the muschles of my upper back. That's from leaning across Daddy, even though we have the hospital bed. This is definitely from the Parkinson's, so I guess it's time to add the Requip to my meds again.
I can tell immediately when I make the se spelling mistakes and typing mistakes. At least I know it's wrong, but I take spellls of not being able to cooridante everything einvolved in acutally typing, And I really wa sa good typist, so it's not because I don't know how LOL!!
Well, of you've srubbled thorugh this you have some idea of the whats' involved in turning out a post the way they usually lool. It's the same with comments.
Did I say that Parkisons' is a terible disease? And I'm ant Stage One!!!!
Labels: "Parkinson's", care giving, choking, coordination, hallucinations, hospital bed, Hoyer Lift, insomnia, pain, Parkies, PWP, Quality of Life, Requip, typing



15 Comments:
At 2/19/2007 1:32 PM ,
RUTH said...
I could understand it and so will many others; in fact I can see no difference in your typing than mine before I have used spellcheck. My biggest problem is I transpose letters....said becomes siad. Even when I'm leaving a comment I have to check it 2 or 3 times before I publish it. You are a remarkable woman and bad spelling doesn't make you any less remarkable! I really hope your back is going to be ok!
A bit naughty to ask as you have already done so much to help in the Art quest but I'm trying to get comments on my latest post on THERE ARE A MILLION STORIES to help raise money for a cancer charity.....every comment I get is worth 50p......it would be great if you could pop over and swell the numbers.
{{hugs}}
Ruth
x
At 2/19/2007 1:59 PM ,
Joe said...
I agree with Ruth. Your typing is no worse than mine. God bless the person that invented spell check!
I hope your back feels better.
At 2/19/2007 2:52 PM ,
Dirty Butter said...
OK, you two!! Sounds like you both need to take typing lessons!! ROTFL!!
I've always had some letter reversals and just plain hitting the wrong keys, just like everyone else, I suppose. But this is nowhere near what my normal typing would look like. I'm sorry if this post came across as whining, but I spend so much time on the computer, and I depend on it as an outlet, that this is a big deal for me.
At 2/19/2007 4:32 PM ,
talj said...
Hi, I wanted to drop by and say thank you so much for supporting myself and Andrew via your post on Ruths blog. We are extremely grateful appreciate you taking the time to help in the fundraising!
Bless you and your family!
{{{HUGS}} and love,
Natalya (talj) xx
At 2/19/2007 6:17 PM ,
Marion said...
DB, in order to understand an illness, sometimes I have to feel and see how it impacts the people who have it.And you have given me that gift for the disease of Parkinson's.
But you know what? Even with the errors, your voice still comes through. The one that makes no spelling mistakes, the one that is always upfront and honest.
Thank you.
At 2/19/2007 6:42 PM ,
Dirty Butter said...
Talj, I'm more than happy to help RUTH raise money for such a worthy cause! Considering how many comments she has on that post, I'm pleasantly surprised that you have the time to come to my blog and put up a comment yourself!!
At 2/19/2007 6:44 PM ,
Dirty Butter said...
I really appreciate your empathy, Marion. I'm at a stage right now where I'm grieving over the slow loss of this skill, and it's painful to write about it.
At 2/20/2007 12:41 AM ,
Sharon Lynne said...
I'll say a prayer for you tonight. You are a great inspiration to everyone!
At 2/20/2007 1:11 AM ,
Dirty Butter said...
I don't feel very inspiring, Sharon Lynne, just whiney. LOL
I really appreciate your prayers.
At 2/20/2007 1:59 AM ,
RUTH said...
Thanks so much for the "button". Mick is about to have his breakfast but will get it set up later. You are a star!
Hope your Dad slept well then hopefully you had some rest.
{{hugs}}
Rx
At 2/20/2007 2:12 AM ,
Dirty Butter said...
If enough sites will display the oversize button, you just might get lucky! Hope so, anyway.
It's 2:00AM, I slept for awhile, then got up wide awake. Grrrrrr
Daddy's sound asleep.
At 2/21/2007 4:01 AM ,
RUTH said...
Only a quick response to your comment re Greg as Mick & I have transport booked for a little (very rare) outing.....you are wonderful with all that you are doing...thank you so much. i haven't managed to make the button show up yet; even on your blog & blogvillage I only see words ...no clickable button but shall persevere when our outing is over.
Much love
Rx
At 2/21/2007 4:46 AM ,
Dirty Butter said...
I hope you enjoy your outing today and the weather is kind to you.
I can click the button, so I'm not sure what the trouble is, unless I goofed trying to write out the code. I wish I knew how to properly display the code, without it being executed!!
Feeling good about finding Greg for you!!
At 2/21/2007 6:15 PM ,
Lori said...
Rosemary,
Thank you for posting this blog. It was truly eye-opening and moving. I write for Gilbert Guide (the foremost resource for everything senior care), and I write and read a lot about care giving and illnesses like Alzheimer’s and Parkinson’s. Seeing as I am not a caregiver, a senior or someone afflicted by either of the aforementioned illnesses, I read as much as I can to try to understand what it’s like living in those scenarios. Your blog, in its unedited glory, put me smack dab in the middle of that reality. It’s that type of honesty that truly educates people. Thank you so much for sharing.
We recently added an eldercare consultant to our blogging team, and she just posted a blog called “Caregiver Burnout.” I don’t know if you ever feel spread a little thin between looking out for yourself and your father, but you may find this blog helpful if that feeling arises. You can read the post here:
http://www.gilbertguide.com/blog/2007/02/21/caregiver-burnout-how-to-deal-with-it-and-avoid-it/
I look forward to visiting your blog again,
Lori
www.GilbertGuide.com
At 2/21/2007 7:21 PM ,
Dirty Butter said...
I don’t know if you ever feel spread a little thin between looking out for yourself and your father Did you hear me burst into laughter when I read that???
I hope you stop by often, Lori, and I've already commented on the post you suggested. I look forward to really reading your blog, and I'll add the link in my side bar just as soon as I can.
As for my "unedited glory" as you call it, my friend Joe, who has Alzheimer's, gives me the courage to be open about what this part of Parkinson's is like for me. I'm not ready to leave my mistakes alone just yet, but he has shown me that it does help people understand if you don't "pretty it up."
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