Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Friday, March 16, 2007

Still about the Same

I've called Hospice back out here twice, because he was in pain that I couldn't resolve with the Morphine, or his breathing was worse. They're good to come, but it takes over an hour for them to make the drive. His heart is still strong, although the body is all but shut down.

I managed to get a little sleep last night, but mostly it's my arm keeping me awake. It's still very swollen above the elbow and painful all the way down to my finger tips. It's hard to say if I pulled a muscle, irritated a tendon, or if this is from the Parkinson's. Whatever it is, I'm not helping to change Daddy now. We have the nurses and aides coming, so Fred helps them do it. Daddy's bottom looks horrible now, but it's to be expected, since we have quit trying to turn him. He's just in too much pain when we have to, to put in a suppository for pain, or to change him. He's resting peacefully almost all the time, if we just leave him alone. So I've opted for bed sores, rather than upsetting him every 2 hours.

Frances is here today, so I've left her with Daddy, and I've moved up to the living room to try to get some sleep. Just thought I'd jot off how things are right now, before I try to get some rest.

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6 Comments:

  • At 3/16/2007 9:50 AM , Blogger RUTH said...

    I hope you have managed to rest and am pleased that you are having some help. I know how difficult it must be for you and agree that it is far kinder to leave your Father in peace that continually turning him. Thinking of you constantly
    Rx

     
  • At 3/16/2007 11:19 AM , Blogger Marion said...

    I can feel your acceptance and peace, even with the painful arm.

    I appreciate how difficult it is to write about your Daddy...and I want to thank you, again! for sharing your thoughts. It has helped me enormously with a similar situation with my Mom, has helped me find acceptance, too.

     
  • At 3/16/2007 12:09 PM , Blogger Dirty Butter said...

    I just put another pain suppository in, and his bottom is no worse, at least. He's so peaceful as long as we leave him alone, and keep the morphine going, that I just don't have the heart to keep turning him. That's a mistake we made with Pop and Mama that I've learned from.

     
  • At 3/16/2007 12:13 PM , Blogger Dirty Butter said...

    I would like to think that this journal would be helpful to you, Marion, and to others in similar situations. I know it helps me to put my thoughts down. I'm a very private person, and don't talk much about my faith to people face to face. It's easy for me to say how I feel here, though.

    You, Ruth, and I are at different places on the same path. I'm glad we found each other.

     
  • At 3/16/2007 1:13 PM , Blogger Sheila said...

    I hope you can get some rest but don't imagine it can be a lot right now. It's good that you can write about what's happening even if it is painful.

    Peace.

     
  • At 3/16/2007 2:10 PM , Blogger Dirty Butter said...

    I've gotten quite a bit of sleep today, Sheila. Frances is in the room with him, and I'm just down the hall, so I'm able to let go and really go to sleep. It still is in spurts, what with phone calls, and my own medicines I have to take. I just woke up to the afternoon meds alarm, but I'll drift back off to sleep again in just a bit.

     

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