Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Monday, May 28, 2007

Decided Against It

I do appreciate the feedback you gave me on the decision about joining the St. Vincent's facility, but we finally decided not to do it at this time. Time was, after all, the deciding factor. It was going to eat up about 3 hours each day I went, and to get any good out of it, I would have to have gone at least 2 days a week, if not 3. I think I can accomplish just about as much with home exercise equipment and our time at the walking track, which is about 5 minutes from home. Of course, in this day and time, we have to take gas prices into account too, and we do live a long way from any of these kinds of sports facilities, with some really bad traffic to contend with both ways.

I continue to accomplish more and more when I exercise in the mornings, but I'm paying for it each night with a lot of sore muscles. DH fusses at me for over doing it, but it doesn't ever seem like I am at the time. It's only later in the day that I realize I've over taxed my muscles. I think some of this pain I experience is coming from the Peripheral Neuropathy, particularly since I went off the Cymbalta. My Neurologist wasn't the least concerned about me taking it in conjunction with the Zelepar, even though the Pharmacist had warned me about the combination. So, I may yet go back on it. But for now, I'm still adjusting to adding the Requip back to my meds, so I don't want to add 2 new drugs at the same time.

The Requip is beginning to upset my stomach, just the way it did last time. I'm having lots of heartburn and belching a lot. Nothing else has changed, so it has to be the culprit. I'll put up with it if it doesn't get much worse than this, but I'm still planning to ask for the Neupro patch when I go back to Dr. S in June.

Just to document where I stand physically:

I can now sit down and stand up from a straight chair without using my arms, at least in the morning. I can't by the evening, though. Sofas and soft chairs I haven't mastered yet. I can walk over 3000 steps a day on the pedometer most days. I've put the handicap toilet seat away for now, as I can deal with the standard one, as long as I have the sink cabinet to hold onto. I'm still using the cane when we go to yard sales and such, where the terrain is unknown, and I still don't go up and down flights of stairs if I can avoid it. Crouching down to get things in and out of my kitchen cabinets is difficult, so I usually depend on DH to do that for me. I lose my balance too easily, particularly with something in my hands. My core muscles, those of the trunk, are definitely getting stronger as I continue to exercise, as I can now lift my behind when I do what's called the Bridge. It's a simple exercise, really. All you do is lie on your back, feet on the floor, with your knees raised, and try to lift your bottom. Until recently, I couldn't lift more than a half inch or so, but now I'm coming completely off the floor.

I'm doing the Tai Chi short form almost every day now, and I'm getting pretty good at it again. My balance continues to improve.

The biggest problem I am having right now, I suppose, is the insomnia. As soon as I started back on the Requip, it started back again. I haven't been able to sleep past 3:00 AM for some time now. I get a lot done on the computer, but I really need the sleep! I've tried napping later in the day, but that doesn't work unless I'm in the car. Then I can doze off almost instantly ;).

So, I am progressing, but I have lots of room for improvement. Eating healthy foods and exercising are just as much medicines for me as anything that comes in a bottle!

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6 Comments:

  • At 6/04/2007 1:34 AM , Anonymous Anonymous said...

    haven't heard from you in quite a while,

    I hope and pray you are ok

    Tami

     
  • At 6/04/2007 10:26 AM , Blogger Marion said...

    Wow, DB! Have you ever progressed! What a wonderful feeling it must be to see some improvement...even if it comes at the expense of sleep.

    And it sounds like you are doing very well without St. Vincent's. Your determination and courage will push you forward, even if it is on your own time and terms! Way to go!

     
  • At 6/05/2007 7:19 AM , Blogger Sheila said...

    I'm sorry you haven't been able to get much sleep. The long trek to St. Vincent's would be hard and I can see why you opted out of going there. Good luck with the home program.

     
  • At 6/08/2007 5:48 AM , Blogger Dirty Butter said...

    Hi Tami,

    Thanks for all your help looking for our toy requests. I've been busy trying to catch up with our eBay sales, plus all the changes that were necessary with the Post Office rate changes. I'm getting a lot done .. just not blogging.

     
  • At 6/08/2007 5:49 AM , Blogger Dirty Butter said...

    I am making great strides of improvement, Marion, but the lack of sleep is beginning to show up, particularly in the afternoons. We have a regular exercise routine worked out, and I'm proud of my accomplishments.

     
  • At 6/08/2007 5:51 AM , Blogger Dirty Butter said...

    The big problem with home exercise programs is that you are not paying for them, and there's not an appointed time to be there. Those are both incentives to keep going, even if you don't feel like it. LOL

    But I'm doing really well on my own, Shelia. It's just a matter of thinking of it as if I were paying for it, and don't want to "lose" my money!!!!

     

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