Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Saturday, July 28, 2007

Startle Reflex Does Me IN!!

Have you ever seen a small baby startle? Their whole body is involved, with arms and legs flailing wildly, looking like they can almost jump straight up off the table. Well, yesterday, I looked like that, and it was a very upsetting episode.

I've always been easily startled, so up until recently, I had not made the connection with my increased jumpiness and my PD. I've been attributing it to my insomnia. After reading about other PWP on the ParkinsonLikeMe site, I've come to realize that this phenomena is a fairly common PD symptom.

We were just finishing up eating at our favorite Mexican restaurant, when the people behind us must have been celebrating someone's birthday. Without any warning to me, because I had my back to them, the waiters had gathered at their booth and started singing loudly in Spanish. I jumped out of my skin. My heart was racing, and it was all I could do to hold the tears long enough to get out of there. Poor hubby was so angry that he all but threw the money for our meal at them, and he vowed we would never come in there again.

I was so upset, partly from still feeling the effects of such a powerful reaction, but also with myself, because I had reacted that way at all. I couldn't stop the tears, and remained very depressed the rest of the day. It completely spoiled our day out, and that's a shame. I can feel the tears welling up, even now as I write about it. Such a simple thing, but it really drove home just how much I have changed.

I read other's stories, like Dan's that I posted about today, and I'm ashamed of myself for being depressed over my little problems. But that only makes the depression worse. I can only pray for strength and make myself get up and do ... do something ... do anything... and not wallow.

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6 Comments:

  • At 7/29/2007 10:33 AM , Blogger Sheila said...

    DB, I felt so bad for you. I can't begin to understand. One thing I found that helped me during my bc experience, was to turn off the subject for a while. I couldn't restore my body, but I could try to clear my mind for a few hours.

    After I'd spent hours on-line at a support discussion forum, most times I found the support I needed and tried to help others experiencing similar journeys. But when I began to lengthen the time away, I discovered I felt beter and thought less about my state of being or what bad thing might happen next.

    I hope these changes slow down and give your spirit a chance to catch up.

     
  • At 7/30/2007 5:57 PM , Blogger Dirty Butter said...

    I'm sure you're right, Shelia, that I'd be better off I would get some time away from reading and writing about PD. That is easier said than done though, as I really do want to chronicle my journey, both for my own use, but hopefully to help others as well.

    Between exercising specifically to alleviate symptoms and constantly taking pills, aware with almost every action that things are not as they used to be, it's hard not to be defined by th Parkinson's.

    You know what you're talking about, having been through it with bc, so I'll really really try to take your advice.

     
  • At 7/31/2007 7:30 AM , Blogger Sheila said...

    I tend to be preachy, but you have to do what makes you feel best. My husband would come in and see me on the computer and say, "Are you still on that thing?" I am just appreciative of the Internet where we can connect and share. I can't imagine you finding this kind of very personal information a few years ago. Doctors, as good as they might be, don't go into the details like someone who has been there, done that can.

     
  • At 7/31/2007 9:16 AM , Blogger Dirty Butter said...

    Being able to read what other people have to say about all these symptoms that doctors tend to ignore is very important to me, and I think to others as well. That's why I've been so public with my own situation. I still see what you're saying, though, Shelia. The old expression around here is, "Rave On! Preacher!" I really appreciate your feedback, and it's taken with love, as I think it is given.

     
  • At 8/01/2007 9:10 AM , Blogger Jackie said...

    Thanks for the visit. Sad your Doc says no chocolate as the dark, milk free chocolate with 75% minimum cocoa is excellent for health, in moderation of course. Only migraine sufferers need be wary.

    I am sorry to hear about you getting startled as it isn't nice if your have the physical problems you have and can really hurt as muscles contract. I am used to it as I often fell out my office chair, to everyones amusement, if anything like a door slammed. I also never sit in the end seat at the movies especially with a thriller or I land up in the aisle and then everyone around me jumps LOL

     
  • At 8/01/2007 9:21 AM , Blogger Dirty Butter said...

    I really miss my chocolate, Jackie, as I'm quite the addict. But, I pay for it when I indulge.

    As for the startling, I always thought I was a jumpy person, but you had me beat hands down!! My DH used to delight in spooking me, but he doesn't try that any more, now that I react so wildly. Does anyone do it to you on purpose?

     

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