Day by Day with Parkinson's and Peripheral Neuropathy

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is Essential Myoclonus. You will find record here of a my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, and no telling what else!

Wednesday, March 26, 2008

It's Been Awhile

Well, the income tax forms appear to be ready, and I have turned over the administration of my TopList to a really great Villager, aka CyberCelt, so those two weighty items aren't bearing down quite as much these days. We can't mail the tax forms yet, because now we have to figure out the forms for the Estate. That scares me just thinking about it. As for BLOG VILLAGE, I'm still finding various links and services that need to be moved to CyberCelt. But I don't mind that, as it is one time thing.

Hubby has recognized that I've been more stressed than usual, but he has said several things that make it obvious he doesn't understand why I'm more stressed than usual. Doing taxes has always been my responsibility, so I feel the pressure more than he does, even though he worked on this year's with me part of the time. And the appointment with Dr. Watts grows closer, too, which increases my nervousness. I've come to terms with the idea that I do not have the disease I thought I did, but the unknown still scares me. It's not that I think it's something worse like a brain tumor. I just don't like the uncertainty. God is trying to teach me to enlarge my Faith Muscle.

I'm not getting any relief from the Lidoderm patches, which is disappointing. But the Physiatrist and I both agreed that he should try the least amount of meds first, because of the April appointment. I am still using them each day, but I can't tell they are doing any good at all. Of course, if I didn't have it on, I might be feeling worse than I am.

My foot continues to jerk uncontrollably any time I relax my leg, such as when I put my feet up in the recliner. I still walk with an awkward gait, but I'm doing OK. The mouth tics haven't been so bad lately, though, which is a blessing. Maybe the Novacaine from the Lidoderm patch is helping my mouth, as I put the patch high on my shoulder as close to the neck on that side as I can get it.

I'm sleeping just fine. Evidently all I really needed was to train myself to not mouth breathe, or it might be that the PD meds were aggravating the apnea. Who knows.

I'm still having trouble setting priorities and finishing tasks. Right now I'm still spending a good bit of time tying up the loose ends of BLOG VILLAGE, plus the Search Service is getting so much traffic that I can't possibly keep up with it. I need to figure out some way to get a partner on that blog, but I'm not sure how I could do that. Our Plush Toys business is doing quite well, which is very satisfying. It's fun to help people find toys they have been looking for, and I know I don't want to stop that. I just need to figure out ways to be more efficient.

I have started a new blog. I know - that sounds crazy, doesn't it. But I needed to help get the Catalog of our toys online so we could sell them quicker than I can on eBay, and that means increasing the traffic. Blogs are a good way of doing that. And starting a blog is not really that hard. I won't be making many posts to it, but it will give our Catalog more links in, which Google loves.

I guess that brings things up to date, and now I'll get off the computer for the night and watch some TV.

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Saturday, March 01, 2008

Re-Testing Peripheral Neuropathy Monday

I see the MDS specialist the first week of April, so it seemed like a good idea to ask for a Neuropathy test before I see him. When I first saw my Neurologist, it was at the suggestion of my Orthopedist, who had concluded that my super labored walking was not caused by lumbar disk pressure.

He sent me to Lakeshore to have the Nerve Conduction Velocity Test, which uses patches like those they stick on the chest to check for heart problems. They pass an electric current and check to see how long it takes the message to register between the patches. It's uncomfortable at the time, but not really too bad. The other test is called Electromyography. That's the one where they poke electrodes the size of needles in your muscles, and it is supposed to show how well the muscles respond when the nerve is stimulated. That test is not at all comfortable. I actually had little pin prick size blood spots all over my legs when that one was over.

Anyway, the results showed definite Axonal Peripheral Neuropathy, mostly in my right leg. Because I was having trouble walking, and the test order came as a result of my Ortho dealing with my back and legs, he did not order the test to be done on my arms as well.

My Neuro was not at all happy that he did not have results for my arms as well as my legs, but he proceeded with the info he had, as my insurance would not likely have paid for a repeat test so soon.

So, I talked to his nurse a couple of days ago, and I'm scheduled to have the complete PN test battery Monday, at my "suggestion" - translate that as strong urging. This test is very uncomfortable, but it seems to me I need to get any tests done now, not wait and "waste" the visit with this very hard to see Head of Neurology at UAB.

I'm still experimenting with any variables I can think of. so, for the last four days I have not used the TAP dental device, which is to control my mild Sleep Apnea. The mouth tics started about the same time I started using the TAP, and I'm trying to be sure that this off and on again mouth twitching I've been doing is not being aggravated by the mouthpiece. Surprisingly, I'm still sleeping 7 or 8 hours a night, even without it. I think it did break me of the mouth breathing habit, which may be the cause of the relaxed jaw that was allowing my throat to close up during sleep.

I have noticed a definite correlation between the mouth twitches or tics and how stressed or tired I am. So they get worse as the day goes on. If I stop to think about them, I can stop them momentarily, but it's as if my mouth is determined to move, no matter what I do, and it soon starts back up again.

I figure I'll make sure Monday that there aren't any other tests I should have done, or repeat, before seeing Dr. Watts at UAB. I have to call his office to change my insurance information to show that Medicare is my Primary insurance now, as this is the month I turn 65. So I will talk to his nurse and see if they suggest any other tests. I have learned to be proactive in such situations. It amazes me that doctor's offices don't initiate this kind of pre-visit planning, but they don't.

By way of contrast, when we made an appointment with a financial counselor to help us with investing my inheritance, we received a huge packet of papers to fill out and a long list of documents to bring with us for our first meeting. That's the way it should be with doctors, in my opinion.

So, I will do what I can to document everything and have everything ready for this crucial visit. I can't even talk to someone about Long Term Care insurance, or anything insurance related, until I have a diagnosis. No insurance company in their right mind would take me on as a customer right now.

Tax Time is looming, and that's one thing I am dreading doing, but I can't put it off much longer. Oh, did you know that people who file an extension will NOT receive this stimulus package $300 thingy they all keep talking about? I have always filed on time, but I know some people habitually delay it, and might need to know that.

I continue to work to get our inventory of plush lovies online, and we have managed to help several families get replacements for lost toys lately, which is extremely satisfying. I'm also helping to beta test a new Mood community on Patients Like Me, and finding the charting of my own moods to be interesting.

I may be twitching, but I am in a good mood today, and that's a great way to end this post.

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Friday, February 22, 2008

Twitching Along ....

We went on our usual Date Day today and visited three Estate Sales. Two were complete duds, but the last one was fun. It was an old country house chock full of a lifetime of collecting all kinds of odds and ends. We both enjoyed ourselves there, and then we stopped by our usual Thrift Store haunts in that area and found enough plush lovies to more than make the day break even. It's fun having a hobby that pays for itself, plus helps other people, too.

We had our second meeting yesterday with our new Financial Adviser, in the process of deciding how to best protect our future and be sure there is money in place to take care of our needs. Our daughters know that we do not want to go to a Nursing Home, but realistically we can't assume they will be in a position to keep one or both of us at home, the way we did our parents. That's way too much a burden to blithely assume someone else will tackle. That means considering Long Term Care Insurance and putting money aside to pay for in home care if at all possible. We've paid out enough over the last ten years to know what is involved, and it's certainly not cheap.

He went over several different options with us, and I was having a really hard time following the differences, pros, cons, etc. So was hubby. We asked lots of questions, some several times, and he patiently went over each concern. We left with several brochures, still not sure of what we need to do. We'll see him again next week, after he's had time to pursue the options we were most interested in. There will be a Long Term Care expert at our next meeting, too.

We won't be able to settle some arrangements until I have a diagnosis. After all, what new insurance company would insure me for anything when my own doctor can't say what is wrong with me! So, for now I am stuck with the insurance I already have, and we can only do the research for more appropriate kinds.

Did I say stress makes my twitches and tremors worse? Yep, you guessed it. By the time we left I was grimacing and shaking like I was keeping time to some peppy music. Hubby even asked me if I was doing my hand on purpose, because it really did look like I was in tempo with the CD. But no, it was my body doing its own little dance duet. I "cured" the nerves the way I always do ...CHOCOLATE!!! Hubby knows what to do, so we stopped and I gorged on brownies. Better than any tranquilizer I have ever used, as there is no spaced out feeling afterwards. ;)

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Wednesday, January 30, 2008

Messing Around

Well, I went to the Dermatologist Monday, and other than a small flareup of my Acne Rosacea, he didn't find anything worrisome. He did say I had some sun damage on my forearms ... But I've had almost 65 years to accumulate that damage, so it's not really surprising. I did the sunbathing stuff in high school and college, but that's just about it. I did have some pretty bad sunburns during that time period. Of course, there were no sunscreens then.

I'm finding the cervical collar to be very helpful, but it hurts to wear it. I've made about all the adjustments that I can to make it work better on my short neck, but it is still uncomfortable. Let's face it -- I have a small face and CPAP and Collars were just not meant for someone my size. It's a shame my hips and tummy haven't figured out they are supposed to be petite, too! LOL

I'm not getting as much use from the TEN's as I thought I would, because it's trouble to hook it all up. That old apathy thing going on again. I need to get in the habit of putting it on before I eat lunch or ride in the car. Those seem to be my worst triggers for pain. It's the leaning forward with no support posture that makes mealtimes hurt. For breakfast and supper, I'm usually on the computer on the sofa, with the laptop in my lap, eating in between typing. Yes, my keyboard needs cleaning out something terrible, but I don't know how.

I'll try to do better by the TEN's today. It's rented for one month, and then, if I think it helped, insurance will pay for it. Seems fair enough to me.

I got just plain disgusted the other day, and told hubby I'm going to go off of all my PD meds for awhile, just to see how I do. I made a short experiment with that right around Christmas, but the holidays weren't really a good time to be experimenting, so it was a very, very short time that I was without the meds. I intend to stick this out for at least a week, maybe longer. I just want to see once and for all if the meds are doing me any good at all.

I worked hard all day yesterday getting more of our plush animals and dolls into our own Plush Animal & Soft Doll Shoppe, so I can more easily sell directly. I'll still be on eBay, but I need to wean away from depending on that source completely for sales. EBay messes with things too much, and changes things at a whim. At least with my own site, I know exactly what's going on. Course, right now, not much IS going on!

I started working on tax forms I have to fill out for the paid caregiver we had with Daddy. Once I do all his taxes, and the Estate's taxes, and pay what is owed to the IRS, we can close out the Estate bank account, and invest the money. It will be good to see the end of that chapter of my life.

Hubby continues to be supportive and helpful, I feel better, I don't have any signs of skin cancers, and I'm accomplishing something with our sales. I'd say that's a pretty good sign that the apathy is lifting. I sure hope so.

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Tuesday, October 30, 2007

7+ Hours Sleep Again!

I was able to stay in the recliner for over 7 hours last night! I'm still getting up several times to go the bathroom, but at least now I'm able to get back to sleep. I figure I'll try turning the screw to advance my lower jaw maybe one or two more nights, and that should be enough. I'm making the Sleep Study appointment today to see if it's controlling the Sleep Apnea properly. If it's not, I can always advance it some more while they monitor it, until I find the right spot.

I will get an appointment for the flu shot today, too.

I'm also going to make an appointment with a Dermatologist today. I don't want to ignore the fact that Parkies have a higher rate of Melanoma than the general population. Particularly since I've inherited a tendency to have lots of moles, some quite large, from both of my parents.

I've never been to a Dermatologist before, but I've learned my lesson and intend to get one who uses the hospital I like. There is a lady Dermatologist associated with my preferred hospital, and I think I would be more comfortable having every square inch of me examined by her, rather than by a man.

My inability to control my emotions is still a very aggravating problem. I started looking for some important insurance paper work this morning, and couldn't find it. I've kept up with that stack of papers for several years now, but when I started to make a phone call referring to it, it was nowhere to be found. After searching everywhere I might have filed it, then looking in places I should not have filed it, I fell apart. Blubbering like a baby and getting DH all upset trying to console me. This awareness of my mental abilities deteriorating right before my eyes is extremely disconcerting.

I finally did find the insurance papers I needed, stuffed in the file folder with the information about Pop's monument that I had worked on the same day I had been working on the insurance. This is some paperwork left over from when DH's Pop died, as we were the executor of his estate, too. Not long after he died my dear hubby had colon cancer surgery, so some of the less urgent parts of settling Pop's estate just got pushed to the background. Now I'm trying to finish all of it up, and get my Daddy's all finished, too.

So, all in all, it's been a productive day, as I was able to get done what needed to be done toward cashing the insurance policy, and I'm going to call and make the appointments just as soon as the doctors' offices get back from lunch.

Once this insurance policy is dealt with, the only things left to take care of are the monuments. Pop's should have already been engraved, so when I talked to the cemetery people, they were extremely apologetic that it had not already been done. And I haven't even started on getting Daddy's information added to the headstone.

I'll be glad to have all this paperwork finished! Daddy's estate will get out of probate at the end of November, and I need to be through with everything by then, so I can quit stressing over it.

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Thursday, July 05, 2007

Blue Funk Is Now Fading

I don't seem to be quite as depressed as I was a few days ago, thank goodness. The money part of the estate is finally taken care of, so the only thing left to do is sell Daddy's car and finish emptying the house of all the furniture and stuff that our DD's don't want. I say "only" like that's not a big deal, but there's a bunch of stuff to get out of our older DD's way. We did bring Daddy's car down to our house yesterday, so at least they can move things out to the garage now that are in their way. We didn't want to do that while all the construction delivery trucks and workers' vehicles were going in and out of our yard.

We put Thompson's Water Seal on the garage floor day before yesterday, and it soaked it up like a sponge. We have to wait until tomorrow for it to be cured, but from the looks of it, we'll have to put another coat on it before we put anything in the garage. Not that we can use it yet, anyway, as only half of it has been roofed. We're waiting for the other special order to come, since the builder didn't order enough of the starter strips for this particular type of shingle. It seems this pattern takes two rows, instead of the standard one, so we have half a roof at the moment. LOL

So many delays have happened with this garage that what would have had me in tears a week ago is now just funny. They don't get paid until we're satisfied, so it's to their advantage to not make all these time consuming mistakes. Go figure.

We bought a pair of trekking poles the other day, as an experiment. The one piece ones are supposed to be better, according to all I could find on the Internet. But it made more sense to try out a cheaper set of adjustable ones that both of us could use at different times, until we see if we like it. Using the walking poles is supposed to be a way to protect the knee, ankle, and hip joints, plus give the upper body a complete workout while you walk. And they are recommended as an excellent exercise tool for PWP.

We're practicing around the house right now. I'm not sure I am going to be able to use the best possible form with them, as it's kind of confusing. It involves holding them with a strap around your wrist and then letting go of the grip when the pole goes back, as you grip the other pole as you walk. Trying to keep my feet coordinated with the poles, plus remembering what my hands are doing, all at the same time, is very confusing. But I can definitely hold onto both poles all the time and do them OK. I can already tell that they are going to increase the exercise my upper arms and shoulders get. I've been walking with one pound weights every other lap now, for some time, in anticipation of trying these poles. I hope that means I'm ready for them, but I'm in no hurry to try to walk very far with them right now. I've learned that slow and easy works better for me.

We managed to salvage enough leftover sheathing and scrap 2x4's to have a good start on finishing off one inside wall of the garage, plus make some shelving, plus there is a good bit of the siding left over that they were going to take to the dump. We kept that, too, in case we ever have storm damage. I've been walking around outside the last few days with one of those magnets on a pole, picking up nails. No telling how long it will take for us to find all of them. With the drought we're having, it's not as if we need to be worrying about using the lawn mower in that part of the yard for awhile, so we should have it cleaned up before we need to be concerned with cutting the grass safely. As for cars, we're still not using the new part of the driveway or going near the garage. Tearing up a tire is just not worth it.

We're making slow headway with our eBay sales, with over 250 items listed now, so I'm hopeful that I can get back to enjoying reading everybody's blogs soon. I did manage to skim through Ruth's blog to see how things were going with her since Mick passed away, and I'm sorry to see that she's had one problem after another, due to the red tape of their national health care system. The more I read what Marion and Ruth have to say about socialized medicine, the surer I become that I pray we never get it in the USA!!

Since I'm writing this at 2 AM I think it's safe to say the insomnia is still going strong. I went to bed about 9:30PM, but I was wide awake by 12:30. I tried going back to sleep about 3:00, but didn't succeed, so I've been up since 3:30 with 3 hours sleep for the night. Counting the days until I see that sleep specialist!!

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Monday, July 02, 2007

Going Through a Depression Phase

I have really tried to stay positive about all that's been happening to me over the last year or so, but I'm not succeeding very well right now. When I went to my Neurologist last time we made a point of telling him that I was crying extremely easily over just about everything. He had a name for it, but it was a mile long, and I forgot what it was. Since he said he didn't want to change any medicines until after I've had the sleep study, there didn't seem to be any point in pursuing it, as long as we've told him about it.

We've been waiting to get the garage we're having built finished. We waited an extra month for the siding and roofing to be special ordered to match the house. Neither one of them is a match - right color, but wrong shapes. And we're stuck with them. That set me into quite a blue funk for the last few days, but I'm getting over that. It's just a garage. Sometimes it's hard to keep perspective about things like that.

We're still dealing with estate business, so that doesn't help with my state of mind right now, either.

I started back on the glycerin suppositories today, as I have gradually had more and more trouble with bowels again. Just as before, there's nothing that would make me consider myself to be constipated, but my muscles just don't push hard enough. They took the Zelnorm off the market that dealt with that problem for me before. So I'm planning on going back on the Bowel Retraining regimen.

So, with the insomnia continuing, the bowel situation flaring up again, and just generally too much going on, I've had better days.

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Monday, June 25, 2007

Losing It

We closed on the house last Thursday, so now one daughter owns Daddy's house, and the other is getting a nice inheritance. It was a very nerve racking event, because the mortgage lady has from day one done a very sloppy job. She has waited until the last minute to tell us about all kinds of things we had to rush around and get done. She's 7 months pregnant, and our DD is afraid if we complain to her boss she will have problems with the baby. If it weren't for DD being so worried about that, we'd be trying to get some of her commission returned to us, as she had to be the worst business person we've ever had to deal with.

Anyway, we went to the bank today and took care of more of the estate business, and I realized after we got there that I had forgotten to bring the mortgage payment check. In fact, I hadn't even thought about bringing it, and I couldn't remember what I had done with it after we got home late Thursday night. I remember telling my DH where I put it when we got home, but he couldn't remember, either. When we came home from the bank, we spent a very hectic afternoon tearing the house apart, looking for it. I was a complete blank, with no idea what the check even looked like. Have you ever tried looking for something when you didn't even know if it was in an envelope or not?? I cried a lot, prayed a lot, and finally gave up.

I figured if I started cleaning up, I might find it, and I finally did, thanks to God's help. It wasn't in a logical place at all. For some reason I had moved it from where I was just sure I had put it to begin with. This whole episode was very scary, and I've told DH that as far as I'm concerned his Power of Attorney just started. I've always been the one to deal with all business matters, but I can't trust myself any more.

Mama had the Alzheimer's type of Parkinson's, and I'm seeing more and more of it in myself. It's very depressing to watch yourself go blank. I can only hope that it will turn out to be the result of my insomnia, not Senile Parkinson's Disease.

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Thursday, June 14, 2007

43rd Wedding Anniversary!

How about that! Yesterday we celebrated our 43rd wedding anniversary. We've actually been seriously in love since 1960, but we waited for me to graduate from college before we got married. I wouldn't recommend that long an engagement to anyone, but getting my education was important, and it's helped our family financially all these years.

We went to a movie and ate out and generally enjoyed being with each other, as we always do. I would wish that all marriages could last so long with so much love still there after all the years.

It did get me out of the house and away from all these estate issues. We'll go to the bank today and open the ESTATE bank account and change over all the CD's to our name. That will be a couple of more things I can then cross off my task list, which is a very satisfying thing to do.

What with all the stuff we've been cleaning out of Daddy's house, I finally got up the gumption to clean out Pop's closet at our house. My FIL lived with us the last few years of his life, and when he died, I just couldn't bring myself to deal with his clothes. They weren't really in my way, so I put it off. Well, now I need the closet to store some of Mama and Daddy's stuff until we can sell it on eBay, so all of Pop's things are bagged up and ready to give to the Thrift Store. I will have to get the name tag labels out of everything, though, as he was in an Assisted Living home his last year, and everything is marked.

I've finally worked our eBay store back up to 250 items listed, which is about all we can afford at one time. Maybe now some other things on my To Do list can move up the line.

I did sleep longer last night, but it was because I took a Darvocet last night. The movie gave me a headache, plus I was generally achy all over. I think I've been over doing it lately, trying to box a lot of things up. Doing a lot more leaning over and picking things up than I have in a long time, and my muscles are complaining about it. Walking is great, but it doesn't take care of all the muscle groups. I have been doing some simple arm exercises with the 1 lb weights, and I've gone back to doing all the neck and shoulder exercises that the Physical Therapist put me on some years ago for the degenerated disk in my neck. I continue to do the Tai Chi, as well, so I'm really trying to build up my muscle tone. I do have a set of exercise videos that I bought several years ago, but that means getting down on the floor. Getting down isn't the problem .. getting back up is! LOL So, I'm postponing using them for awhile. I figure by the time the weather turns cold I'll be strong enough to get up and down safely.

We're still waiting for them to start work on our new garage, as we special ordered everything to match our house. I'm getting antsy, seeing that beautiful driveway and slab, with no building going on. But it will come, sometime soon. I just need to be patient.

Our older DD and SIL have moved into Daddy's house, in the midst of quite a mess. I'm glad it's them and not us!! But youth puts up with stuff that age can't or won't. We're working as hard as we can to empty the house of all of my parent's things, but it's a slow go.

So, I continue to stay busy, improving little by little each day. Crossing things off my list reduces my stress level, so I rejoice every time I finish one small part of this huge undertaking. Some days I have to hunt for something to feel positive about, but I work hard at staying optimistic. Thanks to all of you dear friends for your encouragement!!!!

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Wednesday, June 13, 2007

Nerve Wracking Day!!

We settle on the mortgage on Daddy's house Friday, and Monday and Tuesday were a whirlwind of activity trying to get everything done no one thought to tell us about until the last minute! We found out Saturday that we had to have an Alabama Wood Infestation Report ready for Closing! That left a mad rush to find someone Monday who would come out immediately and have it ready in time. The people that the mortgage lady recommended said they would get in touch with me yesterday to set up an appointment, but they never called. So, I called someone more local and they agreed to come right then!! When I called the first place back to cancel, she said OK and HUNG UP!! No business sense of being polite at all. And they don't know that we intended to get two Termite bonds with them, when time permitted!! Now the nearby business will get that money. HA!!

Then, yesterday, we went to the bank to open an account to receive the estate money, something the tax lawyer had told us to do. Lo and behold, we found out we had to have an Employer Identification Number for the ESTATE!! When I went online to try to find what was needed, the IRS.gov site was just as confusing as it had been when I looked at it right after Daddy's death. So, I called, went through menu hell, and finally talked to several VERY NICE PEOPLE!! What a pleasant surprise. They helped me get the right form and helped me fill it out, and I was able to get the EIN right then. One of them also recommended that I get the publication no. 559, dealing with settling an estate. I've ordered it, and thought some of you might be interested in getting one, too. From what I can tell from the online version of it, it would have been very helpful back when I started all this.

We also found out at the bank that I will need a copy of the will in order to transfer Daddy's CD's over into my name. That sounds simple enough, right? Nothing is simple, when it comes to this stuff. You see, we don't have the will any more. I called our lawyer niece when we got home to ask her if she was through with it, and she told me that our County has it until after Probate, which is like 5 months from now!! But, she was able to FAX a copy to our bank with the court seal on it. Just one more thing to deal with.

We had tried earlier in the day to deal with a newbie on eBay from France who had paid us with a Western Union transfer, a payment method we don't accept. Since he was new, we decided to try to cash it. I had to go online to find the nearest place that would take care of it, and when we went there, the number wouldn't work. After calling the Western Union representative from the phone at their booth in the store, we found that the name on the eBay sale and the amount of the transfer didn't match with the correct information. So ... I've written him, hoping eBay will translate correctly, and told him to get a refund and pay us the way we state in the auction.

This was all just too much stress for me yesterday, and I broke down right in the bank. I managed to keep the tears to a minimum, so I don't think anyone but DH new just how unhinged I was. By the time I had dealt with the IRS to get the form filled out properly, I was on a chocolate crave that couldn't be denied!! Hubby came to the rescue, went to the store and bought me two big Hershey bars, and I promptly ate both of them!!

It's no wonder that I'm writing this at 3 o'clock in the morning!! Hopefully, when some of this stuff is finished with, I'll be less stressed and my body will let me sleep. I sure hope so. I'm really not a worrier, so it's not like I'm lying there in the middle of the night thinking about all this stuff, because I'm not!! But it's taking its toll, anyway.

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Sunday, June 10, 2007

Still NO Sleep

Insomnia is turning out to be my biggest problem right now, because it effects my stamina and mental agility as the day wears on. I start out each morning all fresh and energetic, even with only 4 hours sleep. I'm wide awake and rarin' to go! But I fizzle. Not surprising considering it's been over a month since I've had more than 4 hours a night. I doze in the car when we go anywhere, but other than that, there's nothing.

My Neurologist appointment is coming next week, and he had mentioned doing a sleep study. I think it's time, don't you?? I can't imagine what he can do about it, though, as I'm comfortable in the recliner, and if I snore, there's no one nearby to tell me about it LOL. I do hear my DH sawing away in the bedroom, though. Ah! Maybe HE's the culprit!! ROTFL

I'm really proud of how much stronger physically I am right now, and I'm determined to keep up the good work. I'm doing the Tai Chi almost every day, which definitely improves my balance, walking about 6000 steps on average, lifting 1 lb weights to do the arm exercises, and working around the house more than I have in a long time.

We're about to close on Daddy's house, so that will be out of the way. That leaves his car and all the stuff in the house to get rid of, plus some small insurance policies to deal with. UGH!

I continue to stay behind on all my computer work, but the eBay business is picking up, now that I'm listing new items every day. Maybe in the year 2020 I'll have all of the things we have been buying at Estate Sales sold. HA! Maybe ... but we keep on buying, 'cause that's the fun part for us, as we do that together. One step forward and two steps back! All the online part is strictly my doings. Hubby can't stand computers.

I really do miss all of you, but I just can't work it all in. I don't think I think as fast as I used to.

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Friday, June 08, 2007

I Should Hang My Head in Shame LOL!

I'm sorry. I've really been missing in action lately in the Blogosphere, but I just don't seem to be able to get everything done in a day that I want to accomplish. And, as much as I enjoy blogging, it is not a top priority.

OK, apology aside, here's a brief recap of what's kept me so busy. First of all, we're still fully involved in settling Daddy's estate. Thank goodness we have a lawyer in the family!! We received the Letters Testamentary the other day, so I've had Daddy's car worked on. It's ready to try to sell now. I'm not looking forward to that, but hopefully it won't take long to find a buyer for the price we want for it. We're meeting with our DD and SIL and the mortgage person at the house tomorrow to fill out the sales contract on the house. There's been a good bit of talking back and forth to get all the particulars of the mortgage worked out to our satisfaction, but it looks like they will close within the next two weeks.

We've also been busy having a driveway and patio put in and the foundation for our new garage. We're waiting now for the special order materials we have chosen that will match our house. We were very pleased to find the same siding and shingles we already have are still available. Once we have the garage, we will be bringing the stuff out of Daddy's house that our daughters do not want, and then we'll be having a huge yard sale!! It may be fun to go to them, but it won't be fun to have one!

We have continued to go to the track, and I'm continuing to get stronger. I feel really great in the mornings, and it's hard to make myself quit, when I feel like I can do more. But, by the afternoon, I'm dragging, and by night time, I am worn out and sore. You'd think I'd sleep well with all this activity, but I'm getting about 4 hours a night. I just don't seem to be able to stay asleep long at all. And the sleeping pills don't help, either.

I've been extremely busy with our online business, too, trying to get our listings on eBay back up to our normal number. We have kept on buying, for the fun of it, even though we were not listing much. So now, it's list or not be able to move around our own home!!

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Sunday, April 08, 2007

Getting Back to Normal?

I've gotten a lot done in the last few days. We've had the appraiser out to the house, the taxes are ready to sign and mail, and I'm almost finished with the tax bookwork for our paid caregiver. I finally gave up and went to the Orthopedist about my knee and shoulder, too. The X-rays showed the degenerated cervical disk I already knew about, and arthritis in my knee, which wasn't surprising. Dr. J is guessing that I have a torn miniscus, but it will take an MRI to determine that. From what I've been able to read on the Internet, that seems like a reasonable diagnosis to me, particularly since it was injured when I was shifting Daddy up in the bed.

I'll have to go to Physical Therapy and stay on Extra Strength Tylenol 3 times a day before my insurance will agree to the MRI. That's fine with me, as far as the therapy goes, as I'm sure it will be helpful. The Tylenol doesn't even faze the pain, but I'm following his directions and taking it regularly.

We're still walking at the track early in the mornings, but it's been way too cold the last few days. Alabama is having record cold weather right now. So, we've been doing exercises from videos. DH is REALLY following the tape, and I'm bouncing on one of those little trampolines and doing as much of the arm movements as my shoulder will let me.

I'm still just taking the Zelepar, hoping that the exercise and whatever the doctor does for my knee will be enough. I just don't want to try the Requip, if I can possibly help it.

We had our usual Date Day Friday and enjoyed looking at lots of Estate Sales. We've never been able to be an Early Bird before! It was strange to get there before most of the stuff was gone. And we did manage to pick up a few good buys, I think.

It's been ages now since I've taken pictures and put anything on eBay, but I'm going to try to get back to that this week. We have an almost overwhelming amount of "stuff" we've bought in the last few years, and I haven't been able to work seriously on our online sales for almost 2 years. With so much of the Estate business started now, I'm ready to get back to NORMAL.

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Thursday, March 29, 2007

Lots to Do Settling Daddy's Estate

This is the second time I've been the executor of an estate, but Daddy's is much more involved than Pop's was. Luckily, we have a niece who is a lawyer, so I'll have some help when I'm ready. I've tried researching what I need to do on the Internet, and I've been surprised at how little help I could find. Everything seems to be geared toward Estate Planning, rather than settling an estate.

April 15th is getting closer, too, and I've just not been up to dealing with important numbers. I did get a good start today, though. Starting is half the battle for me, as I find I've become quite the procrastinator in the last few years. I don't know if that's a sign of old age LOL, stress, or Parkinson's!

We walked again this morning, but I was slow as mud. I made it around for a half mile, using the walker. I've been using the walker all this week, but I depended on it more today, as I could feel the tightness in my shoulders when I stopped. That slow as mud feeling is the first Parkinson's symptom I had, so it's looking less and less like I'll be able to continue on just the Zelepar. The Neurologist told me I could go back on the Requip as well, if I felt like I had to. I've resisted, because the Requip gave me stomach troubles last time. Well, I had stomach trouble when I was on the Requip - that doesn't automatically mean the Requip was causing it. It's that uncertainty that has kept me trying to do without it. I'm just not ready to cope with stomach side effects yet. Maybe next week.

I taught 4th and 5th graders for 25 years, but I've seen the "Smarter than a Fifth Grader" TV show a couple of times since I've been back home. It's scary how much my mind goes blank on stuff I know I should know. I hope it's just remnants of caregiver burnout, and not the PD effecting my mental abilities. Stress can really do a number on such tasks, so I'm trying really hard to relax as much as I can. But getting things accomplished is part of what's needed to lower my stress level, too, so it's a matter of finding a balance, I guess.

I continue to be uplifted by all the loving comments. You all really are helping. Just a thought for you, if you need to send a sympathy card to someone. One of our friends included a neatly cut out copy of Daddy's Obituary notice in their card. It was very much appreciated.

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